GCCA in Action: Japanese American Initiative
Among Japanese Americans in the United States, approximately 1 in 18 men and 1 in 20 women are expected to develop colorectal cancer in their lifetime. CRC incidence and mortality rates among Japanese Americans in the U.S. are notably higher compared to those in Japan and other Asian American populations, a disparity that highlights the urgent need for increased awareness, early detection, and prevention efforts within this community.
The Importance of Screening and Awareness
Colorectal cancer is one of the most preventable cancers when detected early or in precancerous stages through routine screening. Understanding symptoms and taking advantage of recommended screening tests can significantly reduce the risk of late-stage diagnoses and improve survival outcomes. Promoting awareness in culturally relevant ways is key to empowering individuals to take action for their health.
For Japanese Americans, promoting awareness and access to screening requires an understanding of the unique cultural, linguistic, and systemic factors that can influence healthcare experiences. Traditionally, Japanese culture emphasizes modesty, respect for authority, and a reluctance to question or challenge those in positions of power, including healthcare providers. These values, while rooted in respect, can sometimes result in underreporting symptoms, hesitancy to seek second opinions, or reluctance to advocate strongly for one’s own health needs. Additionally, language barriers, especially among older generations, can make it difficult to fully understand medical information or communicate concerns effectively. Systemically, a shortage of culturally competent healthcare providers can further contribute to disparities in care and outcomes.
Providing Trusted, Culturally Appropriate Education
To help overcome these barriers, the Global Colon Cancer Association (GCCA) offers translated educational materials designed specifically for Japanese Americans. These resources provide medically accurate information in plain language, ensuring accessibility and clarity. The materials were developed in partnership with Japanese language and culture experts and shared through trusted Japanese American advocates, reinforcing the importance of community-based health education.
By providing culturally appropriate, linguistically accessible materials, GCCA helps empower Japanese Americans to engage more confidently with their healthcare providers, ask questions, and take proactive steps in preventive care and cancer screening.
Partnership with the Mansfield Foundation
In addition to our direct work with the Japanese American community, GCCA has partnered with the Mansfield Foundation, a non-profit organization that promotes understanding and cooperation among the nations and peoples of Asia and the United States. Together, we hosted an in-person event for Mansfield Fellows. GCCA CEO, Andrew Spiegel, introduced Japanese physicians and other participants to the landscape of patient advocacy in the United States, and the event also featured Japanese American advocate and GCCA Consultant, Aiko Brody, who shared valuable insights on culturally sensitive engagement and support within her community.
Discussions highlighted how cultural norms surrounding deference and privacy can shape patient behavior and how community advocates can play a vital role in bridging gaps between patients and healthcare systems.
Understanding Biomarker Testing Needs
In addition to educational and advocacy efforts, GCCA is conducting a cancer biomarker survey with targeted outreach to Japanese American respondents. The goal is to assess their experiences, needs, and access to biomarker testing, an essential tool for guiding personalized cancer treatment. By understanding how cultural and systemic barriers may affect participation in advanced testing, GCCA aims to inform strategies that promote equitable access to precision medicine.
The Global Colon Cancer Association would like to thank Genentech for their sponsorship of our Japanese American initiative.
